Research Studies

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You can help advance the understanding of OCD and help find more effective treatment by volunteering as a RESEARCH PARTICIPANT.

The studies listed on this page are those which are offered either at a local university or allow participation via the internet. Additional studies outside of the local area are listed on the IOCDF website as well as the National Institute of Health clinical trials website.

The International OCD Foundation and the OC Foundation of Western PA are not affiliated with nor do they bear any responsibility for the implementation of any of the following research projects.

Tell us about your rituals! A Web-Based Study from Washington University in St. Louis

We are asking you to describe in as much detail as possible the various rituals and routines that are part of your OCD symptoms. These may consist in mental routines (counting, adding), in special ways of washing oneself or cleaning objects, in hoarding objects, checking locks and car doors, etc. Although there are many clinical studies of OCD symptoms, the description of people's rituals is often very vague. It is important for researchers to understand exactly how these rituals are organized. All this information is treated as anonymous confidential.

If you are interested in helping with this, all you have to do is answer a short questionnaire on the web, at this address: 
For further information, you can contact Dr. Pascal Boyer at
P Boyer, Dept of Psychology, Washington University in St. Louis

Do you have a child diagnosed with Obsessive Compulsive Disorder (OCD) or who displays OCD symptoms?

We are looking for parents to participate in a study examining treatment history of OCD. Your responses may help in improving treatment and access to qualified professionals who can provide effective treatments to children with OCD. This is a completely anonymous survey. Please click the link below to participate in the study.

Click Here to take survey

Children and Adolescents who are Pack Rats: An Exploratory Study to Examine Compulsive Hoarding in Children and Adolescents

The aim of this study is to develop a better understanding of the onset and the clinical features of compulsive hoarding in children and adolescents. According to the limited research available on compulsive hoarding, onset of compulsive hoarding begins in childhood, and hoarding behaviors become more severe with age. Treatment with adults has demonstrated that compulsive hoarding is more resistant to traditional interventions such as medication and exposure and response prevention therapy. Very little is currently known about children and adolescents who struggle with this condition. Therefore, we are currently conducting a cross-sectional research stu dy for information that will build our knowledge base to improve intervention strategies.

Your child must be between the ages of 8-18 and have some symptoms of obsessive compulsive behaviors with  hoarding. All participants will be administered a screening instrument to determine eligibility. Both the child/adolescent and one parent must be willing to participate in telephone interviews.

If eligible, participants will participate in data collection through telephone survey. The participating parent will be interviewed first by phone. Parents will complete a demographic questionnaire, an inventory, and a timeline about their child/adolescent’s behaviors. Children/adolescents will complete two inventories about their obsessive compulsive and hoarding behaviors. It is expected that the parent and child/adolescent interviews will take approximately 20-30 minutes each. Participant families will be compensated with a $20 gift card to WalMart.

To participate in this study or for further information, please contact David Dia, PhD, LCSW, CCBT at the University of Tennessee at (901) 448-4431, or email him at This study is approved by the University IRB.

Online Survey on the Sleep Habits of Children

Surprisingly little is known about the typical sleep habits of children, although it has been shown that disturbed sleep behavior may exacerbate already existing problems in children. Dr. Richard Frye at the Health Science Center at Houston is inviting parents and caregivers of children to complete an online survey about their child's sleep habits. Parents are welcome to complete the survey for each child, whether or not the child has a diagnosis, and all diagnoses are welcome. This survey will help us better understand typical sleep behavior in children, and the information gathered will be invaluable in helping diagnose sleep disorders in children, and guide parents in regards to normal childhood sleep behavior.

The survey can be found here:
 If you have any questions, please contact Laura deSouza at or (713) 500-3236.

Research Survey About Repetitive Behaviors in Children With OCD

Help us understand more about the repetitive behaviors exhibited by children and adolescents with obsessive-compulsive disorder (OCD)!

The University of Alabama Psychology Department is beginning a new study of repetitive behaviors in children and adolescents with OCD as part of a graduate student dissertation. We are interested in families with children between the ages of 7 and 17 years of age. This study examines repetitive behaviors, social interactions, and fears or worries in children with OCD and will provide valuable information for future research and clinical interventions with families of children with OCD. For example, the results from this project may be applied to developing individual and group interventions for children and adolescents with OCD.

Participation involves completing a 30-minute telephone interview and then filling out an internet-based survey regarding your child’s behavior, which will take approximately 1 hour and 15 minutes to complete. You will receive an ID number and password for the internet-based survey and may complete it at your convenience. Once you have completed the survey, you will receive a $5 gift certificate to a major bookstore in your area as a thank you for your time.

If you are interested in participating in this study, please contact Michelle DeRamus, a graduate student supervised by Dr. Laura Klinger, at (205) 348-9312 or by email at for more information.

Anonymous Online Survey of Personality Features (IRB# 5942)

Researchers at Columbia University/NYSPI are seeking adults (age 18 and older) to complete an online survey about thoughts and behaviors related to personality styles. Participation is anonymous and may take up to 60 minutes. The information gathered will contribute to a better understanding of the nature of personality-related problems, leading to improved assessment and treatment. Participation is limited to once per person. For more information, click on this link:  Participants will have a chance to win $100 gift card to

How does the sibling relationship impact Obsessive-Compulsive Disorder?

The purpose of this study is to examine factors associated with the quality of the sibling relationship and how that relationship impacts a child with OCD. We are hoping to discover how the sibling relationship can benefit a child with OCD. We are examining this relationship – via parent-reports - in up to 150 youth with Obsessive-Compulsive Disorder. To participate, your child must be between 6 and 17 years of age and have OCD. In addition, you must be your child’s parent or legal guardian and the child must have interaction with at least one of their siblings.

You will be asked to complete a questionnaire about your children’s behaviors, your child's symptoms related to OCD, and the relationship between that child and the rest of the family, as well as his/her overall quality of life. If you are interested in participating, please follow the link below to begin:

Quality of Life in Adults with OCD

Have you been diagnosed with obsessive-compulsive disorder? Are you between the ages of 18 and 70? If so, we would like to invite you to participate in a survey looking at quality of life in adults with OCD, and the different reasons quality of life might be affected by having OCD. We would love to hear your thoughts about the way OCD has been getting in the way of the life you would like to lead. The survey can be accessed at

If you have questions, contact Jessica Morgan at the University of South Florida at or 727-767-8393.


The OC Foundation of Western PA is affiliated with the International OCD Foundation
Obsessive Compulsive Foundation of Western PA, PO Box 81648, Pittsburgh, PA  15217
(412) END OCD 1 (412) 363-6231
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